Friday afternoon, Belén had her follow up appointment from her allergic reaction. By now, everyone at the doctor’s office knows Belén as this was probably at least the sixth time she has been there in the past month. We were quickly taken to an exam room and after a few questions from the nurse, Dr. B. came in.
She checked Belén’s ears and was thrilled that one was completely clear and the other only had a little fluid in it. I guess what my dad has been saying all along, “You don’t even have to give drugs for an ear infection…in Europe they do not treat them.” was correct as she has not been any drugs since she reacted to the Rocephin and her ears are clear.
Dr. B. invited her doctor colleagues in to see Belén’s legs. One was with other patients but another guy came in. She explained Belén’s condition by saying something like, “I hope you don’t ever have to see this again, but this is blah blah blah, which I think was caused by a reaction to cephalosporins and I don’t think it is HSP because her hands and feet were swollen, yadda yadda. While I felt she was very sympathetic to our cause, I also felt like she was kind of excited to show off her patient with the strange marks on her body. I thought to myself, “why did I pay that $20 co-pay if this is the most exciting thing they have seen all week?”
The doctor was very happy to see Belén acting normal and happy (as are we!) She did seem a little surprised that much of the skin over the bruised/red marks on her legs is flaking off. When I asked her if she was expecting to see the skin pealing she said that honestly she was not, but it was not atypical for what she thinks we are dealing with. She gave us some antibiotic ointment for some of the more raw areas just to prevent further infection. I hesitantly applied it tonight because at this point I would like to avoid all drugs and be back to all nat-u-ral. Unfortunately, I have a sinus infection so she may be getting some trace amounts of amoxicllin in the breast milk too.
I am a horrible sick person and this applies to having my daughter sick. I am patient for a few days but after some time (and in this case 3 weeks!!) I start to forget what it feels like to be healthy and basically just get grumpy and impatient. It gets a little dramatic with me saying things like, “I cannot even remember what it feels like to be healthy.” Way more dramatic than I would ever get under normal circumstances.
Anyway so I asked the doctor about the possibility of it being HSP and if we should take a urine test and she mentioned that she did not think it was that because of the “hives” ie swelling, but if we wanted we could take a urine test. But, she mentioned a urine test requires a catheter which is difficult to do with children. When I told my dad this, he said that you can actually get a urine sample by putting a baggie in the diaper and I think his confidence in our doctor is even further reduced.
To be honest, I don’t know what to think anymore…about this rash, about our doctor. I just want Belén 100% healthy and then to stay that way. I almost don’t remember what it feels like for all of us to be healthy anymore.
(I know, DRAMA QUEEN!)
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March 6th, 2010 at 11:17 pm
Get a second opinion, and probably not from anyone at the place you are currently going.
http://en.wikipedia.org/wiki/Henoch%E2%80%93Sch%C3%B6nlein_purpura
“did not think it was that because of the hives” — ummm “palpable purpura” sounds a lot like hives? No I am not a doctor, I’ve not seen Belen’s spots, and I really have to wonder if a blood screening could be done simply by spraying some blood detector stuff (yeah, that’s the technical term) into a freshly diaper and seeing what happens — if blood is the only thing being sought).
If the frequency is truly 1 in 100,000 as suggested by the wikipedia article, you probably need to find a specialist, and possibly somewhere with a larger population (Salt Lake City, maybe?) and teaching schools.
Best of luck in a happy diagnosis.
If you fear the amoxycillin, pump to keep your production moving, and feed formula.
No, you didn’t ask for solutions, you know me — I’m an engineer always looking for solutions…
alecia Reply:
March 13th, 2010 at 11:20 am
I appreciate the advice. Yours and Lori’s comments really spurred me (and subsequently Andy) into action to try and understand what Belén might be dealing with rather than just going with the doctor’s recommendation. Her legs are almost fully better now, which is good, but I still wonder if it was a virus or allergic reaction. I just hope it never happens again.
Thanks again.
March 7th, 2010 at 9:41 pm
If they have to do a urine test, do the baggie thing. We’ve done both and the baggie way is MUCH easier on the child (and the parents). For testing for blood in the urine they’ve always made us do a urine sample. No fun, but the best results they tell me.
If you do want a second opinion, see Dr. Rand. He’s the pediatric infectious disease doctor here in Boise and also a pediatrician (meaning no extra money for seeing a specialist). He’s good and could help figure out your next steps.
alecia Reply:
March 13th, 2010 at 11:18 am
Thank you for all of the advice. When I asked the doctor about the baggie thing, she said that the sample can be contaminated a lot easier. But when I told my dad that, he said if they are just looking for proteins it shouldn’t matter. If this or something else happens again, I think I have learned a lot about how to be more proactive with treatment, tests, etc. I always remember Lance Armstrong saying that in his first book and I thought I would be more this way, but I have been more laid back about it… It is always so hard to know the right things to do. I really do appreciate your advice.
Thanks!
March 26th, 2010 at 9:15 pm
[...] underlying precondition to all of these occasions is health. We had our bout with sickness which I am thankful has passed (knock on wood!) Belén’s legs are completely better after [...]